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Six-year-old Cohen survives off the machines in his home and his mum’s energy bills could rise to more than £3,000 a year.
Cohen has DiGeorge syndrome and 15q11.2 genetic deletions which means he can’t walk, talk or digest food properly.
Lauren, Cohen’s mum said: “The cost of living crisis, for most people, it’s ‘Oh we just won’t go on holiday this year’ but for us it’s our son’s life.”
Video by Gem O’Reilly