Supporters of Aid in Dying Sue N.J. Over Residency Requirement

If the state were to change its course, aid in dying would become more accessible to millions of Americans.Judy Govatos has heard that magical phrase “you’re in remission” twice, in 2015 and again in 2019. She had beaten back Stage 4 lymphoma with such aggressive chemotherapy and other treatments that at one point she grew too weak to stand, and relied on a wheelchair. She endured several hospitalizations, suffered infections and lost nearly 20 pounds. But she prevailed.Ms. Govatos, 79, a retired executive at nonprofit organizations who lives in Wilmington, Del., has been grateful for the extra years. “I feel incredibly fortunate,” she said. She has been able to take and teach lifelong learning courses, to work in her garden, to visit London and Cape Cod with friends. She spends time with her two grandchildren, “an elixir.”But she knows that the cancer may well return, and she doesn’t want to endure the pain and disability of further attempts to vanquish it.“I’m not looking to be treated to death. I want quality of life,” she told her oncologist. “If that means less time alive, that’s OK.” When her months dwindle, she wants medical aid in dying. After a series of requests and consultations, a doctor would prescribe a lethal dose of a medication that she would take on her own.Aid in dying remains illegal in Delaware, despite repeated legislative attempts to pass a bill permitting it. Since 2019, however, it has been legal in neighboring New Jersey, a half-hour drive from Ms. Govatos’s home.But New Jersey restricts aid in dying to terminally ill residents of its own state. Ms. Govatos was more than willing, therefore, to become one of four plaintiffs — two patients, two doctors — taking New Jersey officials to federal court.The lawsuit, filed last month, argues that New Jersey’s residency requirement violates the Constitution’s privileges and immunities clause and its equal protection clause.“The statute prohibits New Jersey physicians from providing equal care to their non-New Jersey resident patients,” said David Bassett, a lawyer with the New York firm Wilmer Cutler Pickering Hale and Dorr, which brought the suit with the advocacy group Compassion & Choices.“There’s no justification that anyone has articulated” for such discrimination, he added. The suit also contends that forbidding New Jersey doctors to offer aid-in-dying care to out-of-state patients restricts interstate commerce, the province of Congress.The New Jersey Attorney General’s office declined to comment.“I’d like not to die in horrible pain and horrible fear, and I’ve experienced both,” Ms. Govatos said. Even if she enrolls in hospice, many of the pain medications used cause her to pass out, hallucinate and vomit.To be able to legally end her life when she decides to “is a question of mercy and kindness,” she said.It’s the third time that Compassion & Choices has pursued this route in its efforts to broaden access to aid in dying. It filed similar suits in Oregon in 2021 and in Vermont last year. Both states agreed to settle, and their legislatures passed revised statutes repealing residency requirements, Oregon in July and Vermont in May.The plaintiffs hope New Jersey, another blue state, will follow suit. “We hope we never have to go before a judge. Our preference is to negotiate an equitable resolution,” Mr. Bassett said. “That’s what’s important for our patient plaintiffs. They don’t have time for full-fledged litigation.”“It’s not the traditional process of trying to convince a state legislature that this is a good idea,” said Thaddeus Pope, a law professor at Mitchell-Hamline School of Law in St. Paul, Minn., who tracks end-of-life laws and court cases.Dropping residency requirements in New Jersey could have a far greater impact than it will in Oregon or Vermont. The sheer population density along New Jersey’s borders — there are almost 20 million residents in the New York metropolitan area alone — means medical aid in dying would suddenly become available to vastly more people, and much more quickly than it would through legislation.With a major airport and direct flights, “it’s easier to get to Newark than Burlington, Vermont,” Mr. Pope pointed out.Many states where aid in dying is legal have relaxed their statutes because of findings like those in a 2017 study, in which about a third of California patients who asked a doctor about aid in dying either died before they could complete the process or became too ill to continue it.But New Jersey still uses the stricter series of steps that Oregon first codified in 1994. That means two verbal requests to a doctor at least 15 days apart, a written request with two witnesses, and a consultation with a second physician; both must confirm that the patient is eligible. There’s a 48-hour wait after the written request before a prescription can be written.Even without having to establish residency, “it won’t be a walk in the park,” Mr. Pope said. “You can’t just pop over to New Jersey, pick up the drugs and go back.”Finding a doctor willing to prescribe can take time, as does using one of the state’s few compounding pharmacies, which combine the necessary drugs and fill the prescription.Although no official would check to see whether patients travel home with the medication, both Mr. Bassett and Mr. Pope advise that the lethal dose ought to be taken in New Jersey, to avoid the possibility of family members facing prosecution in their home states for assisting in a suicide.Still, preventing dying patients from having to sign leases and obtain government IDs in order to become residents will streamline the process. “Not everyone has the will, the financial means, the physical means” to establish residency, said Dr. Paul Bryman, one of the doctor plaintiffs and hospice medical director in southern New Jersey. “These are often very disabled people.”Bills recently introduced in Minnesota and New York don’t include residency requirements at all, Mr. Pope noted, since they seem likely to be challenged in court.“I think the writing’s on the wall,” he said. “I think all the residency requirements will go, in all the states” where aid in dying is legal. There are 10, plus the District of Columbia (though the legality in Montana depends on a court decision, not legislation).Despite the often heated wrangling over aid-in-dying laws, very few patients actually turn to lethal drugs in the end, state records show. Last year, Oregon reported that 431 people received prescriptions and 278 died by using them, just .6 percent of the state’s deaths in 2022.In New Jersey, only 91 patients used aid in dying last year. Roughly a third of those who receive prescriptions never use them, perhaps sufficiently reassured by the prospect of a swift exit.Fears of “death tourism,” with an onrush of out-of state patients, have not materialized, said John Burzichelli, a former state assemblyman who helped steer New Jersey’s statute through the legislature and now favors allowing eligible nonresidents to participate. “I don’t see lines of people at the tollbooths coming to take advantage of this law,” he said.If her cancer returns and New Jersey has balked at allowing out-of-staters to legally end their lives there, Ms. Govatos contemplates traveling to Vermont. She envisions a goodbye party for a few friends and family members, with poetry reading, music and “very good wine and lovely food.”But driving over the Delaware Memorial Bridge would be so much simpler. “It would be an incredible gift if I could go to New Jersey,” she said.

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Los desafíos de la covid persistente para los adultos mayores

Las personas de más edad pueden confundir la covid persistente con otras afecciones de esta etapa de la vida. Una investigación identifica cuatro grupos concretos de síntomas relacionados con la condición.Pregúntale a Patricia Anderson cómo está, y quizá no obtendrás una respuesta rutinaria. “Hoy trabajo y estoy bien”, dijo un martes reciente. “El sábado y el domingo estuve postrada en cama. La covid prolongada es una montaña rusa”.Antes de la pandemia, Anderson practicaba artes marciales y no tenía auto, sino que caminaba y tomaba autobuses en la zona de Ann Arbor, Míchigan, donde trabaja como bibliotecaria médica. Justo antes de contraer COVID-19 en marzo de 2020, había acumulado —sí, lleva la cuenta— 11.409 pasos en un día.El virus le causó escalofríos extremos, dificultad para respirar, un trastorno del sistema nervioso y tal deterioro cognitivo que, durante meses, Anderson fue incapaz de leer un libro.“Estuve muy enferma durante mucho tiempo y nunca mejoré”, afirmó. Algunos días, el cansancio reducía su número de pasos a tres dígitos. Los intentos de rehabilitación trajeron avances, y luego recaídas.Las decenas de síntomas conocidos de manera colectiva como covid prolongada, o pos-covid, pueden dejar fuera de juego a cualquiera que haya sido infectado. Pero afectan sobre todo a algunos pacientes de edad avanzada, que pueden ser más propensos a ciertas formas de la enfermedad.Alrededor del 11 por ciento de los adultos estadounidenses ha desarrollado covid prolongada después de una infección, informaron los Centros para el Control y la Prevención de Enfermedades (CDC, por su sigla en inglés) el mes pasado, por debajo del casi 19 por ciento registrado entre junio de 2022 y junio de 2023. La cifra sugiere que algunos adultos dejan atrás el síndrome a medida que pasa el tiempo.Las personas mayores de 60 años en realidad tienen tasas más bajas de covid prolongada en general que aquellos de entre 30 y 59 años. Esto podría reflejar tasas de vacunación y refuerzo más elevadas entre los estadounidenses de más edad, o un comportamiento más precavido, como usar cubrebocas y evitar aglomeraciones.“También puede haber factores biológicos que aún no comprendemos”, aseguró Akiko Iwasaki, inmunóloga e investigadora de la Facultad de Medicina de Yale. Aunque el conocimiento que hay de la covid prolongada ha aumentado, añadió, aún queda mucho por saber sobre la enfermedad.Solo recientemente Anderson, de 66 años, ha recuperado la mayor parte de sus funciones cognitivas y algunas físicas; ahora puede dar entre 3000 y 4000 pasos diarios. Pero usa un cubrebocas N95 siempre que sale y un bastón con asiento plegable para sentarse, de modo que “si voy de compras y me quedo sin fuerzas a mitad del pasillo, puedo descansar”.Y se preocupa. Su jefe le ha permitido seguir trabajando a distancia, pero ¿y si la biblioteca empieza a exigirle más de su actual jornada semanal de manera presencial? “No puedo jubilarme”, señaló. “Me da mucho miedo”.Según los CDC, la covid prolongada comienza cuando los síntomas persisten un mes o más después de la infección. Pero la Organización Mundial de la Salud la define como “la continuación o el desarrollo de nuevos síntomas” tres meses después de la infección inicial, los cuales duran al menos dos meses sin ninguna otra explicación.La extensa lista de síntomas de la covid prolongada incluye dificultades respiratorias, enfermedades cardiovasculares y metabólicas, enfermedad renal, trastornos gastrointestinales, pérdida cognitiva, fatiga, dolor y debilidad muscular y problemas de salud mental.“Casi no hay sistema orgánico al que no afecte la covid prolongada”, explicó Ziyad Al-Aly, investigador clínico de salud pública de la Facultad de Medicina de la Universidad de Washington y autor principal de un estudio reciente que demuestra que estos síntomas pueden persistir durante dos años.“Puede afectar a casi todo el mundo, desde niños hasta adultos mayores, a lo largo de toda la vida”, afirmó.Aunque es más probable que la covid prolongada afecte a personas que enferman gravemente de covid y requieren hospitalización —y los síntomas de la covid prolongada duran más en esos pacientes—, también puede aparecer tras infecciones leves. Puede aparecer tras el primer brote de covid, o tras el segundo o el cuarto.Paxlovid reduce el riesgo de covid prolongada en aproximadamente un 20 por ciento entre las personas de 60 años y en aproximadamente un 34 por ciento entre las personas mayores de 70 años. Wolfgang Rattay/ReutersAunque, en general, las personas mayores no son más propensas a padecer covid prolongada, la investigación de Al-Aly, realizada a partir de grandes bases de datos del Departamento de Asuntos de los Veteranos, muestra que tienen más riesgo de padecer cuatro grupos concretos de síntomas:Trastornos metabólicos, como diabetes de nueva aparición y colesterol alto.Problemas cardiovasculares, como cardiopatías, infartos y arritmias como la fibrilación auricular.Problemas gastrointestinales, como diarrea y estreñimiento, pancreatitis y enfermedades hepáticas.Accidentes cerebrovasculares, deterioro cognitivo y otros síntomas neurológicos.Jane Wolgemuth contrajo COVID-19 en junio de 2022, junto con su marido. “Él lo superó en dos días”, recordó. “Yo estuve en cama una semana”.Ambos se sintieron mejor tras tomar el antiviral oral Paxlovid. Sin embargo, meses después, Wolgemuth, de 69 años, empleada jubilada de un banco de Monument, Colorado, empezó a notar problemas cognitivos, sobre todo al conducir.“No reaccionaba con la rapidez suficiente”, relató. “La niebla cerebral se estaba apoderando de mí”.Las personas mayores pueden confundir la covid prolongada con otras afecciones comunes a la edad avanzada. “Pueden pensar: ‘Tal vez solo estoy envejeciendo o necesito ajustar mi medicación para la presión arterial’”, dijo Mónica Verduzco-Gutiérrez, catedrática de medicina de rehabilitación en el Centro de Ciencias de la Salud de la Universidad de Texas en San Antonio. Es coautora de las directrices de la Academia Americana de Medicina Física y Rehabilitación para el tratamiento de la covid prolongada.La covid prolongada también puede agravar los problemas de salud que ya padecen muchas personas mayores. “Si tenían un deterioro cognitivo leve, ¿pasan a la demencia? Lo he visto”, aseguró Verduzco-Gutiérrez. Una afección cardiaca leve puede agravarse, reducir la movilidad de una persona mayor y aumentar el riesgo de caídas.“La mejor manera del mundo de prevenir la covid prolongada es prevenir la covid”, afirmó Al-Aly. A medida que aumentan las tasas de infección en todo el país, usar cubrebocas de nuevo en lugares cerrados y comer al aire libre en restaurantes puede ayudar a reducir el contagio.“Definitivamente, hay que vacunarse”, señaló. “La vacunación y los refuerzos reducen, pero no eliminan, el riesgo de covid prolongada”, entre un 15 y un 50 por ciento, según los estudios.“Hazte la prueba para asegurarte de que se trata de covid, luego llama a un proveedor lo antes posible y comprueba si eres apto para recibir Paxlovid”, dijo. El tratamiento antivírico también reduce el riesgo de contraer la covid prolongada en aproximadamente un 20 por ciento para las personas de 60 años, y en un 34 por ciento para las mayores de 70.Dado que aún no hay estudios longitudinales todavía, no está claro si las personas mayores se recuperan más lentamente de la covid prolongada. Pacientes como Anderson y Wolgemuth han probado toda una serie de tratamientos: suplementos, electrolitos, prendas de compresión y diversos regímenes de fisioterapia. “Pero no disponemos de un medicamento que haya demostrado revertirla”, concluyó Iwasaki.Ciertos enfoques de rehabilitación han demostrado ser efectivos, señaló Verduzco-Gutiérrez, pero no hay suficientes programas o clínicas con experiencia en covid prolongada. Algunos médicos descartan los síntomas prolongados, según informaron los pacientes.Eso los deja, en gran medida, buscando soluciones por su cuenta.“Se están organizando juntos para abogar por la investigación y encontrar tratamientos”, dijo Iwasaki, comparando a los pacientes con covid prolongada con los activistas contra el sida de la década de 1980. Codirige el estudio LISTEN de Yale, que trabaja con pacientes con covid prolongada para comprender mejor sus condiciones.El gobierno de Joe Biden anunció recientemente una nueva oficina federal para liderar investigaciones sobre la covid prolongada y están comenzando más ensayos clínicos. Sin embargo, por ahora, muchos pacientes dependen de grupos como Long Covid Support y Covid-19 Longhauler Advocacy Project, y participan en Patient-Led Research Collaborative.Sheila McGrath, de 71 años, que vive en Herndon, Virginia, se recuperó de su primera infección por covid en febrero de 2020, pero ha sufrido desde su segundo episodio cinco meses después. Aunque su salud ha mejorado, “no he vuelto a ser la misma de antes”, dijo.Ahora ella y Anderson son copresentadoras de un chat en línea de apoyo a covid prolongada. “A menudo alguien termina llorando”, dijo McGrath. “Están muy frustrados porque no los escuchan, no los validan, les dicen que es psicosomático y les niegan el tratamiento. Ninguno de nosotros quiere estar enfermo”.

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Long Covid Poses Special Challenges for Seniors

Older people are less likely to be diagnosed but more likely to experience certain kinds of illnesses, research suggests.Ask Patricia Anderson how she is doing, and you probably will not get a routine answer. “Today, I’m working and I’m fine,” she said on a recent Tuesday. “Saturday and Sunday, I was bedridden. Long Covid is a roller coaster.”Before the pandemic, Ms. Anderson practiced martial arts and did without a car, instead walking and taking buses around Ann Arbor, Mich., where she is a medical librarian. Just before contracting Covid-19 in March 2020, she had racked up — oh, she keeps track — 11,409 steps in one day.The virus caused extreme chills, shortness of breath, a nervous system disorder and such cognitive decline that, for months, Ms. Anderson was unable to read a book.“I was very sick for a long time, and I never really got better,” she said. On some days, fatigue cut her step count to three digits. Rehabilitation attempts brought progress, then crashes.The dozens of symptoms collectively known as long Covid, or post-Covid, can sideline anyone who has been infected. But they take a particular toll on some older patients, who may be more prone to certain forms of the illness.About 11 percent of American adults have developed long Covid after an infection, the Centers for Disease Control and Prevention reported last month, down from the almost 19 percent recorded from June 2022 to June 2023. The figure suggests that some adults are pulling out of the syndrome as time passes.People over age 60 actually have lower rates of long Covid overall than those aged 30 to 59. That might reflect higher vaccination and booster rates among older Americans, or more protective behavior like masking and avoiding crowds.“There may also be biologic factors we don’t understand yet,” said Akiko Iwasaki, an immunologist and researcher at Yale School of Medicine. Though knowledge of long Covid has increased, she added, much remains unknown about the illness.Only recently has Ms. Anderson, 66, regained most cognitive and some physical function; she can manage 3,000 to 4,000 daily steps now. But she wears an N95 mask whenever she goes out and takes a sitting cane so “if I go shopping and run out of steam halfway down the aisle, I can rest.”And she worries. Her employer has allowed her to continue working remotely, but what if the library starts requiring more than her current one day a week on-site? “I can’t afford to retire,” she said. “It’s very scary.”The C.D.C. says long Covid begins when symptoms persist a month or more after infection. But the World Health Organization defines long Covid as “the continuation or development of new symptoms” three months after the initial infection, lasting at least two months with no other explanation.The extensive list of long Covid symptoms includes breathing difficulties, cardiovascular and metabolic diseases, kidney disease, gastrointestinal disorders, cognitive loss, fatigue, muscle pain and weakness and mental health problems.“There’s almost no organ system long Covid doesn’t touch,” said Dr. Ziyad Al-Aly, a clinical epidemiologist at Washington University School of Medicine and senior author of a recent study showing that these symptoms can persist for two years.“It can affect nearly everyone from children to older adults, across the life span,” he said.Though long Covid is more likely to afflict people who become severely ill with Covid and require hospitalization — and long Covid symptoms last longer in those patients — it can also follow mild infections. It can arise after the first bout of Covid, or the second or fourth.Paxlovid reduces the risk of long Covid by about 20 percent among those in their 60s and by about 34 percent among those over 70.Wolfgang Rattay/ReutersWhile older people are not more prone to long Covid overall, Dr. Al-Aly’s research using large Veterans Affairs databases shows that they are more at risk for four particular clusters of symptoms:Metabolic disorders, including new-onset diabetes and high cholesterol.Cardiovascular problems, including heart disease, heart attacks and arrhythmias like atrial fibrillation.Gastrointestinal problems like diarrhea and constipation, pancreatitis and liver disease.Strokes, cognitive decline and other neurological symptoms.Jane Wolgemuth caught Covid in June 2022, along with her husband. “He waltzed through it in two days,” she recalled. “I was in bed for a week.”They both felt better after taking the oral antiviral Paxlovid. Yet months later, Ms. Wolgemuth, 69, a retired bank employee in Monument, Colo., began noticing cognitive problems, particularly when driving.“I wasn’t reacting fast enough,” she said. “The brain fog was really taking over.”After an MRI and other tests came back normal, Ms. Wolgemuth was diagnosed with long Covid. She has been taking supplements and trying light therapy, and she has stretched her walking distance to four miles most days.She feels more herself, she said, but “it’s remarkable how destructive Covid was.”Seniors may mistake long Covid for other conditions common at older ages. “They may think, ‘Maybe I’m just aging or I need to adjust my blood pressure medication,’” said Dr. Monica Verduzco-Gutierrez, the chair of rehabilitation medicine at the University of Texas Health Science Center at San Antonio. She has co-authored American Academy of Physical Medicine and Rehabilitation guidance statements for treating long Covid.Long Covid can also exacerbate the health problems many seniors already contend with. “If they had mild cognitive impairment, do they move into dementia? I’ve seen that happen,” Dr. Verduzco-Gutierrez said. A mild heart condition can become more serious, reducing an older person’s mobility and increasing fall risks.“The best way in the world to prevent long Covid is to prevent Covid,” Dr. Al-Aly said. As infection rates tick up across the country, masking again in close quarters and eating outdoors at restaurants can help reduce infection.“Definitely get boosted,” he said. “Vaccination and boosters reduce but don’t eliminate the risk of long Covid” — by 15 percent to 50 percent, studies have found.“If you’re infected, get tested to be sure it’s Covid, then call a provider as soon as possible and see if you are eligible for Paxlovid,” he said. The antiviral treatment also reduces the risk of long Covid by about 20 percent for those in their 60s, and by about 34 percent for those over 70.Without longitudinal studies yet, it’s unclear if older people recover from long Covid more slowly. Patients like Ms. Anderson and Ms. Wolgemuth have tried an array of treatments — supplements, electrolytes, compression garments, various physical therapy regimens. “But we don’t have a medicine that has been shown to reverse it,” Dr. Iwasaki said.Certain rehabilitation approaches have proven to be effective, Dr. Verduzco-Gutierrez pointed out, but there are not enough programs or clinics experienced with long Covid. Some doctors dismiss long Covid symptoms, patients have reported.That leaves them searching for solutions largely on their own.“They are rising up together to advocate for research and find treatments,” Dr. Iwasaki said, comparing long Covid patients to the AIDS activists of the 1980s. She co-directs the Yale LISTEN study, which works with long Covid patients to better understand their conditions.The Biden administration recently announced a new federal office to lead long Covid research, and more clinical trials are beginning. For now, though, many patients rely on groups like Long Covid Support and the Covid-19 Longhauler Advocacy Project, and participate in the Patient-Led Research Collaborative.Sheila McGrath, 71, who lives in Herndon, Va., recovered from her first Covid infection in February 2020, but has suffered ever since her second bout five months later. Though her health has improved, “I haven’t gotten back to where I was,” she said.Now she and Ms. Anderson co-host an online chat for Long Covid Support. “Often someone winds up in tears,” Ms. McGrath said. “They’re so frustrated with not being listened to, not being validated, being told it’s psychosomatic, being refused treatment. None of us wants to be sick.”

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How Nursing Homes Failed to Protect Residents From Covid

A series of hurdles prevented the facilities from shielding older people, despite the best efforts of staff. Experts are calling for reforms before the next virus arrives.The first terrifying wave of Covid-19 caused 60,000 deaths among residents of nursing homes and other long-term care facilities within five months. As the pandemic wore on, medical guidelines called for promptly administering newly approved antiviral treatments to infected patients at high risk of severe illness, hospitalization or death.Why, then, did fewer than one in five nursing home residents with Covid receive antiviral treatment from May 2021 through December 2022?It’s hardly the only way that the nation’s nursing homes proved unable to keep patients safe. A series of studies assessing their attempts to protect vulnerable patients and workers from Covid, along with interviews with experts inside and outside the industry, presents a very mixed pandemic report card.Brian McGarry, a health economist at the University of Rochester, and David Grabowski, a health care policy researcher at Harvard Medical School, both gave the health care system a D grade overall for nursing homes’ pandemic performance.“I kept waiting for the cavalry to come, and it really hasn’t, even today,” Dr. Grabowski said. “At no time during the pandemic did we prioritize nursing homes.” More than 167,000 residents have died, Medicare reported this month, along with at least 3,100 staff members.It was Dr. McGarry, Dr. Grabowski and their co-authors who discovered the failure to deliver antiviral medications. Early on, antivirals meant monoclonal antibodies, a difficult treatment. The drugs were in short supply and administered intravenously; patients might need to leave the facility to receive them.But in December 2021, the Food and Drug Administration granted emergency authorization to Paxlovid, a pill taken for five days. It drastically improves the prognosis for eligible patients who are 65 and older, sick and frail.Virtually every nursing home resident meets that description. This is “the highest of the high-risk groups,” Dr. McGarry said. Age and chronic illnesses make the residents vulnerable, “and they’re living in an environment that’s perfect for spreading airborne viruses,” he added, with shared rooms, communal spaces and staff moving from one patient to the next.As the saying went, a nursing home was like a cruise ship that never docked.But research recently published in JAMA found that only a quarter of infected residents received antivirals, even during the last six weeks of the study — by which time Paxlovid was widely available and free.About 40 percent of the nation’s approximately 15,000 nursing homes reported no antiviral use at all.“They’re basically depriving people of treatment,” said Dr. Karl Steinberg, a medical director at three nursing homes in Southern California and former president of AMDA, the medical association representing providers in long-term care. “It’s surprising and disturbing.”Only a quarter of infected nursing home residents received antivirals, even when Paxlovid was widely available and free, according to a recent study.Pfizer, via ReutersOne bright spot, several industry leaders agreed, was the federally coordinated rollout of the Covid vaccine, which sent providers to facilities in late 2020 and early 2021 to vaccinate residents and staff.“A remarkable achievement, a collaboration between science and government,” said Dr. Noah Marco, chief medical director of Los Angeles Jewish Health, which cares for about 500 residents in three skilled nursing facilities.By early 2022, Medicare reported, 87 percent of residents and 83 percent of employees had been vaccinated, though it took a federal mandate to reach that staff rate. Studies have shown that high staff vaccination rates prevent infections and deaths.But “we totally dropped the ball on boosters,” Dr. McGarry said. “We just left it up to each nursing home.” Medicare reported this month that about 62 percent of residents per facility, and just 26 percent of staff, are up-to-date on Covid vaccinations, including recommended boosters.“It’s disappointing,” Dr. Steinberg said. But with workers less likely to perceive Covid as a deadly threat, even though hospitalization and death rates recently began climbing again, “people say no, and we cannot force them,” he said.Other grounds for poor grades: Early federal efforts prioritized hospitals, leaving nursing homes short of critical protective equipment. Even after the federal government began sending point-of-care testing kits to most nursing homes, so they wouldn’t have to send tests off to labs, getting results took too long.“If we can find and detect people carrying Covid, we’ll keep them out of the building and prevent transmission,” Dr. McGarry explained. That largely meant staff members, since Medicare-mandated lockdowns shut out visitors.A resident of a senior living center in Oregon after getting a booster shot. Medicare reported this month that about 62 percent of residents per facility, and just 26 percent of staff, are up-to-date on Covid shots.Alisha Jucevic for The New York TimesNursing homes apparently didn’t make much use of the testing kits. By fall 2020, fewer than a fifth had the recommended turnaround of less than 24 hours. “It negates the value of doing the test in the first place,” Dr. McGarry said.As for those lockdowns, which barred most family members until November 2021, the consensus is that however reasonable the policy initially seemed, it continued for far too long.“In retrospect, it caused a lot of harm,” Dr. Steinberg said. “We saw so much failure to thrive, people losing weight, delirium, rapid onset of dementia. And it was usually the staff who were bringing in Covid anyway. A big lesson is that family visitors are essential,” assuming those visitors are tested before they enter and that they use protective gear.Dr. David Gifford, a geriatrician and the chief medical officer of the American Health Care Association, which represents long-term care providers, pointed to a variety of frustrating problems that prevented nursing homes from doing a better job during the pandemic.Point-of-care kits that required 15 minutes to read each test and thus couldn’t screen workers arriving for a shift. Prescribing information emphasizing such a long list of possible drug interactions with Paxlovid that some doctors were afraid to use it. And the same suspicion and resistance toward boosters and antivirals that now affect the country as a whole.“Nursing homes did as much as they could with what they had,” he said. “The health care system as a whole sort of ignored them.”Staffing, already inadequate in many facilities before Covid, took a hit it has yet to recover from. “It’s our No. 1 issue,” Dr. Gifford said. His association has reported that nursing homes lost nearly 245,000 employees during the pandemic and have regained about 55,000.“The people working in nursing homes certainly get an A for effort” for persevering at their dangerous jobs, Dr. Steinberg said. But so many have left that nursing homes now often restrict new admissions.Some long-proposed changes could help protect residents and staff from future pandemics.Facilities could improve their ventilation systems. They could abandon “semiprivate” rooms for private ones. Dividing buildings into smaller units with consistently assigned staff — an approach pioneered by the Green House Project — would both bolster relationships and reduce residents’ exposure to infection from workers coming and going.All those changes would require more investment, however, principally from Medicaid, which underwrites most nursing home care. And with more money would come increased federal oversight, which the industry rarely welcomes.“Investment in our industry, in order for us to provide the highest-quality care, is absolutely necessary,” Dr. Marco said. “But where is the government and public will to do that? I personally don’t see a lot of encouragement right now.”

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A Number That Should Guide Your Health Choices (It’s Not Your Age)

Life expectancy increasingly figures into calculations about whether screenings and treatments are appropriate. Here’s how to find out yours. At her annual visit, the patient’s doctor asks if she plans to continue having regular mammograms to screen for breast cancer, and then reminds her that it’s been almost 10 years since her last colonoscopy.She’s 76. Hmmm.The patient’s age alone may be an argument against further mammogram appointments. The independent and influential U.S. Preventive Services Task Force, in its latest draft guidelines, recommends screening mammograms for women 40 to 74, but says “the current evidence is insufficient to assess the balance of benefits and harms of screening mammography in women age 75 years or older.”Screening for colorectal cancer, with a colonoscopy or with a less invasive test, becomes similarly questionable at advanced ages. The task force gives it a C grade for those 76 to 85, meaning there’s “at least moderate certainty that the net benefit is small.” It should only be offered selectively, the guidelines say.But what else is true about this hypothetical woman? Is she playing tennis twice a week? Does she have heart disease? Did her parents live well into their 90s? Does she smoke?Any or all such factors affect her life expectancy, which in turn could make future cancer screenings either useful, pointless or actually harmful. The same considerations apply to an array of health decisions at older ages, including those involving drug regimens, surgeries, other treatments and screenings.“It doesn’t make sense to draw these lines by age,” said Dr. Steven Woloshin, an internist and director of the Center for Medicine and Media at the Dartmouth Institute. “It’s age plus other factors that limit your life.”Slowly, therefore, some medical associations and health advocacy groups have begun to shift their approaches, basing recommendations about tests and treatments on life expectancy rather than simply age.“Life expectancy gives us more information than age alone,” said Dr. Sei Lee, a geriatrician at the University of California, San Francisco. “It leads to better decision making more often.”Some recent task force recommendations already reflect this broader view. For older people undergoing lung cancer tests, for instance, the guidelines advise considering factors like smoking history and “a health problem that substantially limits life expectancy” in deciding when to discontinue screening.The task force’s colorectal screening guidelines call for considering an older patient’s “health status (e.g., life expectancy, co-morbid conditions), prior screening status and individual preferences.”The American College of Physicians similarly incorporates life expectancy into its prostate cancer screening guidelines; so does the American Cancer Society, in its guidelines for breast cancer screening for women over 55.But how does that 76-year-old woman know how long she will live? How does anybody know?A 75-year-old has an average life expectancy of 12 years. But when Dr. Eric Widera, a geriatrician at the University of California, San Francisco, analyzed census data from 2019, he found enormous variation.The data shows that the least healthy 75-year-olds, those in the lowest 10 percent, were likely to die in about three years. Those in the top 10 percent would probably live for another 20 or so.All these predictions are based on averages and can’t pinpoint life expectancy for individuals. But just as doctors constantly use risk calculators to decide, say, whether to prescribe drugs to prevent osteoporosis or heart disease, consumers can use online tools to get ballpark estimates.For instance, Dr. Woloshin and his late wife and research partner, Dr. Lisa Schwartz, helped the National Cancer Institute develop the Know Your Chances calculator, which went online in 2015. Initially, it used age, sex and race (but only two, Black or white, because of limited data) to predict the odds of dying from specific common diseases and the odds of mortality overall over a span of five to 20 years.The institute recently revised the calculator to add smoking status, a critical factor in life expectancy and one that, unlike the other criteria, users have some control over.“Personal choices are driven by priorities and fears, but objective information can help inform those decisions,” said Dr. Barnett Kramer, an oncologist who directed the institute’s Division of Cancer Prevention when it published the calculator.He called it “an antidote to some of the fear-mongering campaigns that patients see all the time on television,” courtesy of drug manufacturers, medical organizations, advocacy groups and alarmist media reports. “The more information they can glean from these tables, the more they can arm themselves against health care choices that don’t help them,” Dr. Kramer said. Unnecessary testing, he pointed out, can lead to overdiagnosis and overtreatment.A number of health institutions and groups provide disease-specific online calculators. The American College of Cardiology offers a “risk estimator” for cardiovascular disease. A National Cancer Institute calculator assesses breast cancer risk, and Memorial Sloan Kettering Cancer Center provides one for lung cancer.Calculators that look at single diseases, however, don’t usually compare the risks to those of mortality from other causes. “They don’t give you the context,” Dr. Woloshin said.Probably the broadest online tool for estimating life expectancy in older adults is ePrognosis, developed in 2011 by Dr. Widera, Dr. Lee and several other geriatricians and researchers. Intended for use by health care professionals but also available to consumers, it offers about two dozen validated geriatric scales that estimate mortality and disability.The calculators, some for patients living on their own and others for those in nursing homes or hospitals, incorporate considerable information about health history and current functional ability. Helpfully, there’s a “time to benefit” instrument that illustrates which screenings and interventions may remain useful at specific life expectancies.Consider our hypothetical 76-year-old. If sh e’s a healthy never-smoker who is experiencing no problems with daily activities and is able, among other things, to walk a quarter mile without difficulty, a mortality scale on ePrognosis shows that her extended life expectancy makes mammography a reasonable choice, regardless of what age guidelines say.“The risk of just using age as a cutoff means we’re sometimes undertreating” very healthy seniors, Dr. Widera said.If she’s a former smoker with lung disease, diabetes and limited mobility, on the other hand, the calculator indicates that while she probably should continue taking a statin, she can end breast cancer screening.“Competing mortality” — the chance that another illness will cause her death before the one being screened for — means that she will probably not live long enough to see a benefit.Of course, patients will continue to make decisions of their own. Life expectancy is a guide, not a limit on medical care. Some older people don’t ever want to stop screenings, even when the data shows they’re no longer helpful.And some have exactly zero interest in discussing their life expectancy; so do some of their doctors. Either party can over- or underestimate risks and benefits.“Patients simply will say, ‘I had a great-uncle who lived to 103,’” Dr. Kramer recalled. “Or if you tell someone, ‘Your chances of long-term survival are one in 1,000,’ a strong psychological mechanism leads people to say, ‘Oh thank God, I thought it was hopeless.’ I saw it all the time.”But for those seeking to make health decisions on evidence-based calculations, the online tools provide valuable context beyond age alone. Considering projected life expectancy, “You’ll know what to focus on, as opposed to being frightened by whatever’s in the news that day,” Dr. Woloshin said. “It anchors you.”The developers want patients to discuss these predictions with their medical providers, however, and caution against making decisions without their involvement.“This is meant to be a jumping-off point” for conversations, Dr. Woloshin said. “It’s possible to make much more informed decisions — but you need some help.”

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Substance Abuse Is Climbing Among Seniors

Many aging baby boomers have long histories with drugs, cannabis and alcohol. “The field wasn’t ready for that,” said one expert.When Dr. Benjamin Han, a geriatrician and addiction medicine specialist, meets new patients at the School of Medicine at the University of California, San Diego, he talks with them about the usual health issues that older adults face: chronic conditions, functional ability, medications and how they’re working. He asks, too, about their use of tobacco, alcohol, cannabis and other nonprescription drugs. “Patients tend to not want to disclose this, but I put it in a health context,” Dr. Han said.He tells them, “As you get older, there are physiological changes and your brain becomes much more sensitive. Your tolerance goes down as your body changes. It can put you at risk.”That’s how he learns that someone complaining about insomnia might be using stimulants, possibly methamphetamines, to get going in the morning. Or that a patient who has long taken an opioid for chronic pain has run into trouble with an added prescription for, say, gabapentin.When one 90-year-old patient, a woman fit enough to take the subway to his previous hospital in New York City, began reporting dizziness and falls, it took Dr. Han a while to understand why: She washed down her prescribed pills, an increasing number as she aged, with a shot of brandy.He has had older patients whose heart problems, liver disease and cognitive impairment were most likely exacerbated by substance use. Some have overdosed. Despite his best efforts, some have died.Until a few years ago, even as the opioid epidemic raged, health providers and researchers paid limited attention to drug use by older adults; concerns focused on the younger, working-age victims who were hardest hit.But as baby boomers have turned 65, the age at which they typically qualify for Medicare, substance use disorders among the older population have climbed steeply. “Cohorts have habits around drug and alcohol use that they carry through life,” said Keith Humphreys, a psychologist and addiction researcher at the Stanford University School of Medicine.Aging boomers “still use drugs far more than their parents did, and the field wasn’t ready for that.”Evidence of a growing problem has been stacking up. A study of opioid use disorder in people over 65 enrolled in traditional Medicare, for instance, showed a threefold increase in just five years — to 15.7 cases per 1,000 in 2018 from 4.6 cases per 1,000 in 2013.Tse-Chuan Yang, a co-author of the study and a sociologist and demographer at the University at Albany, said the stigma of drug use may lead people to underreport it, so the true rate of the disorder may be higher still.Fatal overdoses have also soared among seniors. From 2002 to 2021, the rate of overdose deaths quadrupled to 12 from 3 per 100,000, Dr. Humphreys and Chelsea Shover, a co-author, reported in JAMA Psychiatry in March, using data from the Centers for Disease Control and Prevention. Those deaths were both intentional, like suicides, and accidental, reflecting drug interactions and errors.Most substance use disorders among older people involve prescribed medications, not illegal drugs. And since most Medicare beneficiaries take multiple drugs, “it’s easy to get confused,” Dr. Humphreys said. “The more complicated the regimen, the easier to make mistakes. And then you have an overdose.”The numbers so far remain comparatively low — 6,700 drug overdose deaths in 2021 among people 65 and older — but the rate of increase is alarming.“In 1998, that’s what people would have said about overdose deaths in general — the absolute number was small,” Dr. Humphreys said. “When you don’t respond, you end up in a sorrowful state.” More than 100,000 Americans died of drug overdoses last year.Alcohol also plays a major role. Last year, a study of substance use disorders, based on a federal survey, analyzed which drugs older Americans were using, looking at the differences between Medicare enrollees under 65 (who may qualify because of disabilities) and those 65 and older.Of the 2 percent of beneficiaries over 65 who reported a substance use disorder or dependence in the past year — which amounts to more than 900,000 seniors nationwide — more than 87 percent abused alcohol. (Alcohol accounted for 11,616 deaths among seniors in 2020, an 18 percent increase over the previous year.)In addition, about 8.6 percent of disorders involved opioids, mostly prescription pain relievers; 4.3 percent involved marijuana; and 2 percent involved non-opioid prescription drugs, including tranquilizers and anti-anxiety medications. The categories overlap, because “people often use multiple substances,” said William Parish, the lead author and a health economist at RTI International, a nonprofit research institute.Although most people with substance use problems don’t die from overdoses, the health consequences can be severe: injuries from falls and accidents, accelerated cognitive decline, cancers, heart and liver disease and kidney failure.“It’s particularly heartbreaking to compare rates of suicidal ideation,” Dr. Parish said. Older Medicare beneficiaries with substance use disorders were more than three times as likely to report “serious psychological distress” as those without such disorders — 14 percent versus 4 percent. About 7 percent had suicidal thoughts, compared with 2 percent who didn’t report substance disorders.Yet very few of these seniors underwent treatment in the past year — just 6 percent, compared with 17 percent of younger Medicare beneficiaries — or even made an effort to seek treatment.“With these addictions, it takes a lot to get somebody ready to get into treatment,” Dr. Parish said, noting that almost half of the respondents over 65 said they lacked the motivation to begin.But they also face more barriers than younger people. “We see higher rates of stigma concerns, things like worrying about what their neighbors would think,” Dr. Parish said. “We see more logistical barriers,” he said, such as finding transportation, not knowing where to go for help and being unable to afford care.It may be “harder for older adults to try to navigate the treatment system,” Dr. Parish said.Uneven Medicare coverage also presents obstacles. Federal parity legislation, mandating the same coverage for mental health (including addiction treatment) and physical health, guarantees equal benefits in private employer insurance, state health exchanges, Affordable Care Act marketplaces and most Medicaid plans.But it has never included Medicare, said Deborah Steinberg, senior health policy attorney at the Legal Action Center, a nonprofit working to expand equitable coverage.Advocates have made some inroads. Medicare covers substance use screening and, since 2020, opioid treatment programs like methadone clinics. In January, following congressional action, it will cover treatment by a broader range of health professionals and cover “intensive outpatient treatment,” which typically provides nine to 19 hours of weekly counseling and education. Expanded telehealth benefits, prompted by the pandemic, have also helped.But more intensive treatment can be hard to access, and residential treatment isn’t covered at all. Medicare Advantage plans, with their more limited provider networks and prior authorization requirements, are even more restrictive. “We see many more complaints from Medicare Advantage beneficiaries,” Ms. Steinberg said.“We’re actually making progress,” she added. “But people are overdosing and dying because of lack of access to treatment.” Their doctors, unaccustomed to diagnosing substance abuse in older people, may also overlook the risks.In an age cohort whose youthful drinking and drug use have sometimes provided amusing anecdotes (a common refrain: “If you can remember the ’60s, you weren’t there”), it can be difficult for people to recognize how vulnerable they have become.“That person may not be able to say, I’m addicted,” Dr. Humphreys said. “It’s a Rubicon people don’t want to cross.”A joke about dropping acid at Woodstock “makes me colorful,” he added. “Crushing OxyContin and snorting it is not colorful.”

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Hospice Is a Profitable Business, but Nonprofits Mostly Do a Better Job

Nearly three-quarters of hospice organizations are now for-profit. Complaints of fraud and profiteering are growing.In the nearly 20 years that Megan Stainer worked in nursing homes in and around Detroit, she could almost always tell which patients near death were receiving care from nonprofit hospice organizations and which from for-profit hospices.“There were really stark differences,” said Ms. Stainer, 45, a licensed practical nurse. Looking at their medical charts, “the nonprofit patients always had the most visits: nurses, chaplains, social workers.”The nonprofit hospices responded quickly when the nursing home staff requested supplies and equipment. By contrast, she said, “if you called and said, ‘I need a specialized bed,’ with for-profits it could take days — days when the patient is in a bed that’s uncomfortable.”Ms. Stainer, now a private duty nurse and certified death doula in Hamburg, Mich., also found nonprofits more willing to keep patients enrolled and for-profits more prone to “live discharge” — removing patients from hospice ostensibly because they no longer met the criteria for declining health, then re-enrolling them later.“It seemed like people were being discharged when they still needed their services,” Ms. Stainer said. “There never seemed to be a logical reason.” But long enrollments and live discharges can help hospices boost profits and avoid financial penalties, analysts have pointed out.Researchers have for years reported that there are, indeed, substantial differences overall between for-profit and nonprofit hospices; a new study based on family caregivers’ experiences provides additional evidence.Medicare began covering hospice care four decades ago, when most hospices were nonprofit community organizations relying heavily on volunteers. It has since become a growth industry dominated by for-profit businesses.In 2001, 1,185 nonprofit hospices and just 800 for-profits provided care for Americans with terminal illnesses who were expected to die within six months. Twenty years later, almost three-quarters of the nation’s 5,000-plus hospices were for-profits, many affiliated with regional or national chains.The shift was probably inevitable, said Ben Marcantonio, interim chief executive of the National Hospice and Palliative Care Organization, which represents both types along with some government hospices. Roughly half of Americans who die each year now turn to hospice. The number of Medicare beneficiaries enrolling in hospice rose to 1.7 million in 2020 from 580,000 in 2001.“The growth of for-profit providers is largely responding to growing need,” Mr. Marcantonio said. “It’s evolved within a health care system that not only accepts but encourages for-profit providers. To think hospice would be exempt from that forever probably wasn’t realistic.”Yet the proliferation of for-profit hospices has stoked fears that dying patients and their families are being shortchanged to improve companies’ bottom lines.The most recent report from MedPAC, the independent agency advising Congress on Medicare spending, found that in 2020, for-profits received 20.5 percent more from Medicare than they spent providing services. The margin for nonprofits, whose daily per-patient expenditures are higher, averaged 5.8 percent.“We’re not going to get profiteering out of the business until we make changes,” said Larry Atkins, chief policy officer of the National Partnership for Healthcare and Hospice Innovation, which represents about 100 nonprofit hospices.He acknowledged, only a bit grudgingly, that “there are a lot of sophisticated players on the for-profit side that do a decent job.”Barbara Reiss discovered that in 2017, when her 85-year-old mother was dying of cancer at her home in River Ridge, La. A for-profit hospice proved “very responsive to us,” she said, even when the family called for advice at 2 a.m. The hospice provided all the necessary supplies and drugs and sent nurses regularly.“When we were really having trouble, they came,” Ms. Reiss said. Her mother died peacefully, and the family turned to the same for-profit hospice three years later, when her father died in assisted living at 95.But numerous studies have documented that as a group, nonprofits provide better care. All hospices within a geographic area receive the same daily payment per Medicare beneficiary, but patients enrolled in nonprofits receive more visits from nurses, social workers and therapists, according to a 2019 study by the consulting firm Milliman.For-profits are more likely to discharge patients before they die, a particularly distressing experience for families. “It violates the implicit contract hospice makes, to care for patients through the end of life,” Dr. Atkins said.Dr. Joan Teno, a Brown University health policy researcher, and her team reported in 2015 on these “burdensome transitions,” in which patients were discharged, hospitalized and then readmitted to hospice.That happened to 12 percent of patients in for-profits affiliated with national chains, and to 18 percent of patients enrolled in for-profits that weren’t chain-affiliated — but to only 1.4 percent of patients in nonprofit hospices.Dr. Teno’s latest study, undertaken with RAND Corporation, analyzes the family caregiver surveys that Medicare introduced in 2016. Using data from 653,208 respondents from 2017 to 2019, the researchers ranked about 31 percent of for-profit hospices as “low performers,” scoring well below the national average, compared with 12.5 percent of nonprofits.More than a third of nonprofits, but only 22 percent of for-profits, were “high performers.” In 2019, the Department of Health and Human Services’ inspector general’s office also reported that most hospices it identified as low-performing were for-profits.Apart from such differences, the hospice industry has been plagued by fraud in several states. Investigations by The Los Angeles Times in 2020 and by the state auditor found that scores of new for-profit hospices were getting certified and billing Medicare in California.The number far outstripped need, and dozens of hospices shared common addresses, the auditor noted, concluding that “numerous indicators suggest large-scale hospice fraud and abuse” in Los Angeles County. Last year, the state imposed a moratorium on hospice licenses.In November, national hospice associations urged Medicare to take action in Nevada, Arizona and Texas, where similar patterns of growth and abuse have emerged.Researchers and critics have also raised alarms about private equity firms acquiring hospice organizations and, intending to resell them within a few years, reducing costs through measures like cutting staff. Most of those acquisitions were previously nonprofits.Advocates, researchers and industry leaders have long lists of reforms they think will fight fraud and improve services, from strengthening the way Medicare conducts quality surveys to shifting from a per-diem payment model to more individualized reimbursement.“It’s clear we need to strengthen oversight, but we must also modernize payment programs to meet the needs of patients and make it harder for people to game the system,” Representative Earl Blumenauer, an Oregon Democrat who has long been involved in end-of-life legislation, said in an email.Meanwhile, families seeking reliable, compassionate hospice care for loved ones need to undertake research, at a time when they shouldn’t have to, to select a provider. “It’s not as simple as avoiding all for-profits,” Dr. Teno said. “Because of the variations, you have to really look at the data.”The Medicare.gov website notes not only which hospices are nonprofit but also other quality measures. (The National Hospice Locator also provides such information, and the CaringInfo site from the National Hospice and Palliative Care Organization offers general guidance.)Dr. Teno advised caution if more than 40 percent of a hospice’s patients have dementia or are in assisted living facilities or nursing homes, both associated with higher profit margins.Quality hospices provide not only “routine home care,” the most common type of hospice service, but also higher levels of care when needed, including inpatient services. Look for a hospice with a four- or five-star rating, she added, although some geographic regions lack one.Most family caregivers still give hospice care high approval ratings, despite its changes and problems, but the need for improvement is clear.“It’s a small segment of the health care system, but it’s such an important one,” Dr. Teno said. “If you screw it up, people don’t forget.”

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Moving Is a Monumental Task for Many Older Americans. These Organizers Can Help.

Senior move managers may spend weeks or months helping seniors and their families sort through belongings, pack and move into a new home.The four-bedroom house that Ray and Beth Nygren had lived in for 20 years in Auburn, Wash., measured about 2,400 square feet. The two-bedroom apartment that awaited them in a nearby independent- and assisted-living complex was less than half that size.They were moving — “maybe a little reluctantly,” said their daughter, Bonnie Rae Nygren — because each had undergone heart-valve replacement surgery last year, and Beth Nygren had suffered complications. The single step from living room to dining room, or down to the family room, had become difficult for her to manage using a walker.She’d already taken a fall. “They considered it a very minor thing, but it was really eye-opening for us,” said Bonnie Rae. “One more fall could make a huge difference in their lives.”The couple’s three children suggested that with Beth, 85, coping with multiple sclerosis and Ray, 87, contending with heart failure, “maybe it was time to downsize and move to a retirement community,” Bonnie Rae said.Earlier this year, the family began sorting through 65 years of possessions. “Digging in, we realized how much stuff they had,” Ms. Nygren recalled. “How many towels do you need? What dishes do you want to take? What pictures do you want on the walls? And, what about the things you can’t take?” The process felt overwhelming.The family had never heard of senior move managers until the retirement facility recommended a few, including RR Move Co. The elder Nygrens almost balked when owner Rebecca Ricards walked through their house, talked with them about their concerns, took lots of photos — and quoted a price of $5,400 for planning the move, packing their belongings and setting up the new residence, not including the moving van and movers.Bonnie Rae Nygren, left, with Rebecca Richards of RR Moving Co. in Ms. Nygren’s parents’ kitchen. Ms. Nygren said her parents were reluctant at first about the idea of hiring help for the move.Chona Kasinger for The New York TimesBut reassured by her experience and confidence, they hired her, with their son contributing a chunk of the costs.About 1,100 such companies belong to the National Association of Senior & Specialty Move Managers, which offers training and certification, and requires members to carry liability insurance and adhere to a code of ethics.Depending on the needs of clients, move managers’ services include sorting and organizing belongings, working with a moving company and using a floor plan to determine what can fit where in the new residence.They prepare the new home, from spices in the cabinets to towels on the racks; they can sell, donate or dispose of what’s left behind. Though Ms. Ricards charges by the job, most move managers charge $65 to $125 an hour, with big regional variations, said Mary Kay Buysee, the association’s co-executive director.That’s not within everyone’s means, but most clients are moving into private-pay senior living facilities, often after selling a house, and can afford the additional expense. Clients with smaller budgets may be able to purchase some services, not the whole package. Family members may also help shoulder the costs.“It’s not just packing and unpacking,” Ms. Buysee said. “It’s working with the clients and the family for weeks or months, going through a lifetime of possessions. You need to be a good listener.”Older people relocate far less frequently than younger ones. A Census Bureau report in 2022 found that from 2015 to 2019, about 6.2 percent of the population over age 65 had moved in a given year, compared with about 15 percent of the younger population. Still, senior migration topped three million adults a year. The rate increased among those over age 85 and those with a disability.The most common reasons for moving? Living closer to family members topped the list, especially among those 75 and older, according to a survey published in the Journal of the American Planning Association last year. Respondents also cited better neighborhoods and reduced housing costs.The entryway to the Nygrens’ new home.Chona Kasinger for The New York TimesThough senior move managers often work with adult children to help move their parents, the industry is seeing an uptick in younger seniors hiring managers for themselves, Ms. Buysee added.A New York native, Alissa Ballot had already downsized from a house in Florida to a Chicago apartment when, in 2021, she decided “it was time to move home.” But selling her place in Chicago while finding an apartment in New York during the pandemic became “nervous breakdown time,” said Ms. Ballot, 67, a retired lawyer. “There were all these balls up in the air — a few balls too many.”Dawson Relocation Services in Chicago charged her less than $1,000 (at $65 an hour) to coordinate the move. “I was able to set a date to get on a plane with a few suitcases and leave everything else to them,” Ms. Ballot said. “It was a miracle.”She unpacked on her own, but she didn’t have to return to clean out and close up her Chicago apartment. Marnie Dawson even helped her file claims when the movers dinged a couple of Ms. Ballot’s possessions.(Besides senior move managers, older movers may encounter real estate agents, attorneys, senior living staff and others who are “certified relocation and transition specialists.” About 1,000 individuals have passed this credentialing exam, said Donna Surges Tatum, chair of the Certified Relocation & Transition Specialist Certification Board. The National Association of Realtors also designates “senior real estate specialists.”)Relocating older adults involves particular challenges. Unlike younger movers, they’re generally shifting into smaller, not larger, spaces — after decades more time to accumulate stuff. And their families, for better or worse, are often involved.A move manager has to be a social worker in part. “We’re sometimes dealing with people with cognitive issues. Family dynamics come into play,” said Diane Bjorkman, whose company serving the Twin Cities, Gentle Transitions, is the country’s oldest and probably largest senior move management company.A nonjudgmental professional can often calm tensions. “It’s not you telling your mom, ‘Don’t take the torn recliner,’” Ms. Bjorkman said. “It’s someone else saying, ‘Maybe another chair would work better.’”Ms. Richards worked with Ray Nygren to detail where items should go in the new space. “Everything was in place,” said Ms. Nygren.Chona Kasinger for The New York TimesMy sister and I hired a senior move manager for our father, who was moving into an independent living apartment, when it became clear that discussing matters like precisely how many identical plastic flashlights he needed could consume months. We deferred to a third party.Still, in the end, the client decides. One woman who hadn’t cooked for 20 years insisted that she needed to hold on to a particular roasting pan, Ms. Bjorkman recalled. The woman also argued that, as someone who remembered the Depression, a freestanding freezer was a crucial source of comfort — even if it was full of expired food.The roasting pan could be disassembled to fit under the bed in the new apartment, Ms. Bjorkman said. The freezer — still packed with food — served as a living room side table.The Nygrens made no such unusual requests. Their children handled the weeks of sorting and paring, and Ray Nygren — a retired engineer — drew detailed schematics of the new apartment, showing where items should go.RR Move Co. did the rest, packing one day in March and moving them into their new apartment the next. At about 6 p.m., Ms. Ricards and her crew phoned the family to say they were ready for what she calls “the big reveal.”“We walked in, and it was like walking into your home,” Beth Nygren said, getting weepy on the phone. There were no boxes in sight. The move managers had made the beds, set the clocks, made sure Ray’s computer was operational.“Everything was in place: clothes in the closet, pictures on the wall, stuff in the drawers,” Ms. Nygren said. “You could just start living.”

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Too Many Older Men Are Still Screened for Prostate Cancer

Most have low-risk cancers and rarely benefit from treatment, a new study finds. Actively monitoring the condition is often the best choice.Last summer, Joe Loree made an appointment to see his urologist. He’d occasionally noticed blood in his urine and wanted to have that checked out. His doctor ordered a prostate-specific antigen, or P.S.A., test to measure a protein in his blood that might indicate prostate cancer — or a number of more benign conditions.“It came back somewhat elevated,” said Mr. Loree, 68, an instructional designer who lives in Berkeley, Calif. A biopsy found a few cancer cells, “a minuscule amount,” he recalled.Mr. Loree was at very low risk, but nobody likes hearing the c-word. “It’s unsettling to think there’s cancer growing within me,” he said.But because his brother and a friend had both been diagnosed with prostate cancer and had undergone aggressive treatment that he preferred to avoid, Mr. Loree felt comfortable with a more conservative approach called active surveillance.It typically means periodic P.S.A. assessments and biopsies, often with M.R.I.s and other tests, to watch for signs that the cancer may be progressing. His hasn’t, so now he can get P.S.A. tests every six months instead of every three.Research shows that a growing proportion of men with low-risk prostate cancer are opting for active surveillance, as medical guidelines now recommend.The diagnosis used to lead directly to aggressive treatment. As recently as 2010, about 90 percent of men with low-risk prostate cancer underwent immediate surgery to remove the prostate gland (a prostatectomy) or received radiation treatment, sometimes with hormone therapy.But between 2014 and 2021, the proportion of men at low risk of the cancer who chose active surveillance rose to nearly 60 percent from about 27 percent, according to a study using data from the American Urological Association’s national registry.“Definitely progress but it’s still not where we need to be,” said Dr. Matthew Cooperberg, a urologic oncologist at the University of California, San Francisco, and lead author of the study.Changing medical practice often takes a frustratingly long time. In the study, 40 percent of men with low-risk prostate cancer still had invasive treatment. And approaches vary enormously between urology practices.The proportion of men under active surveillance “ranges from 0 percent to 100 percent, depending on which urologist you happen to see,” Dr. Cooperberg said. “Which is ridiculous.”The latest results of a large British study, recently published in the New England Journal of Medicine, provide additional support for surveillance. Researchers followed more than 1,600 men with localized prostate cancer who, from 1999 to 2009, received what they called active monitoring, a prostatectomy or radiation with hormone therapy.Over an exceptionally long follow-up averaging 15 years, fewer than 3 percent of the men, whose average age at diagnosis was 62, had died of prostate cancer. The differences between the three treatment groups were not statistically significant.Although the cancer in the surveillance group was more likely to metastasize, it didn’t lead to higher mortality. “The benefit of treatment in this population is just not apparent,” said Dr. Oliver Sartor, an oncologist at the Mayo Clinic who specializes in prostate cancer and who wrote an editorial accompanying the study.“It doesn’t help people live longer,” Dr. Sartor said of the treatment, probably because of what is known as competing mortality, the likelihood of dying from something else first.Men whose P.S.A. readings and other test results indicate higher-risk tumors, or who have family histories of prostate cancer deaths, fall into a different category, experts cautioned.“The point of screening is to find the aggressive tumors — a small minority, but they kill more men than any other cancer except lung cancer,” Dr. Cooperberg said.But most prostate cancer grows so slowly, if it grows at all, that other illnesses are likely to prove lethal first, especially among older men. During the British study, one in five men died from other causes, predominantly cardiovascular or respiratory diseases and other cancers.That’s why guidelines from the U.S. Preventive Services Task Force and the American College of Physicians recommend against routine prostate cancer screening for men over 69 or 70, or for men who have less than a 10- to 15-year life expectancy. (Men ages 55 to 69 are advised to discuss the harms and benefits with health care providers before deciding to be screened.)Newly revised guidelines from the American Urological Association recommend shared decision-making after age 69, taking into account age, life expectancy, other risk factors and patients’ preferences.“If you live long enough, prostate cancer is almost a normal feature of aging,” Dr. Cooperberg explained. “By the 70s or 80s, half of all men have some cancer cells in their prostates.”Most of those tumors are deemed “indolent,” meaning that they don’t spread or cause bothersome symptoms.Nevertheless, about half of men over 70 continue P.S.A. screening, according to a new study in JAMA Network Open. Though testing declined with age, “they really shouldn’t be getting screened at this rate,” said the lead author Sandhya Kalavacherla, a medical student at the University of California, San Diego.Even among men over 80, almost 40 percent were still getting routine P.S.A. tests. An elevated P.S.A. reading can prompt a cascade of subsequent tests and treatments, because “‘cancer’ is an emotionally charged term,” Dr. Sartor acknowledged. He still sees patients, he said, whose response to very low-risk cancer is, “I want it out, now.”But treatment involves significant side effects, which often ease after the first year or two but may persist or even intensify. The British data showed, for instance, that six months after treatment, urinary leakage requiring pads affected roughly half of the men who’d had a prostatectomy, compared to 5 percent of those who underwent radiation and 4 percent of those under active surveillance.After six years, 17 percent of the prostatectomy group still needed pads; among those under active surveillance, it was 8 percent, and 4 percent in the radiation group.Similarly, men under active surveillance were more likely to retain the ability to have erections, though all three groups reported decreased sexual function with age. After 12 years, men in the radiation group were twice as likely, at 12 percent, to report fecal leakage as men in the other groups.The financial costs of unnecessary testing and treatment also run high, as an analysis of claims from a large Medicare Advantage program demonstrate. The study, recently published in JAMA Network Open, looked at payments for regular P.S.A. screening and related services for men over 70 with no pre-existing prostate problems.“The initial screening, which is unnecessary, triggers these follow-up services, a series of events catalyzed by anxiety,” said David Kim, a health economist at the University of Chicago and lead author of the study. “The further it progresses, the harder it is to stop.”From 2016 to 2018, each dollar spent on a P.S.A. test on men over 70 generated another $6 spent for additional P.S.A. tests, imaging, radiation and surgery.Extrapolated to traditional Medicare beneficiaries, Medicare could have spent $46 million for P.S.A. tests for men over 70 and $275 million in follow-up care, Dr. Kim said.“We need to change the incentives, how providers get paid,” he said.He suggested that refusing to reimburse them for procedures that receive low recommendations from the U.S. Preventive Services Task Force could mean fewer inappropriate P.S.A. tests and less aggressive treatment in their wake.Some urologists and oncologists have called for a different kind of shift — in nomenclature. “Why are we even calling it ‘cancer’ in the first place?” asked Dr. Sartor, who has argued against using the word for small, low-risk tumors in the prostate.A less frightening label — indolent lesions of epithelial origin, or I.D.L.E., was one suggestion — could leave patients less inclined to see test results as lethal portents and more willing to carefully track a common condition that might never lead to an operating room or a radiation center.

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They May Be Just Acquaintances. They’re Important to You Anyway.

The people at the dog park, the bank teller, the regular waiter — these casual relationships may be “weak ties,” but they’re also a key to well-being.Victoria Tirondola and Lam Gong first struck up a conversation last spring at the dog run in Brookdale Park in Bloomfield, N.J., when they realized that each owned a dog named Abby. Ms. Tirondola, 65, an insurance sales representative who lives in nearby Cedar Grove, has a tiny bichon-poodle mix. Mr. Gong’s Abby, older and portlier, is a terrier-beagle.They chatted about dogs at first. Then they learned that they both cooked, so “we talked about food and restaurants,” said Mr. Gong, 67, a retiree living in Clifton.“And how much better my cooking is than his,” put in Ms. Tirondola. They were sitting on a bench, as the dogs dashed around on a warm spring afternoon, with a third member of a growing collection of regulars: Pattie Marsh, dog walker for a miniature Australian shepherd named Ollie.“All of us live alone,” Ms. Tirondola said. “My mom just passed away in July, and we were very close. Lam lost his wife a few years ago.”“It gives us companionship” to meet at the Bark Park, said Ms. Marsh, 55. She and Ms. Tirondola, who bonded as born-again Christians, come daily. Mr. Gong joins them once or twice a week. So does Lee Geanoules, 69, a part-time restaurant server from Clifton, who soon arrived with Charlie, a pug and beagle blend.Psychologists and sociologists call these sorts of connections “weak ties” or “peripheral ties,” in contrast to close ties to family members and intimate friends. Some researchers investigating weak ties include in that category classmates, co-workers, neighbors and fellow religious congregants. Others look into interactions with near-strangers at coffee shops or on transit routes.People who cross paths at the dog run, for instance, may recognize other regulars without knowing their names (though they probably know their dogs’ names) or anything much about them. Nevertheless, impromptu chats about pets or the weather often arise, and they’re important.Such seemingly trivial interactions have been shown to boost people’s positive moods and reduce their odds of depressed moods. “Weak ties matter, not just for our moods but our health,” said Gillian Sandstrom, a psychologist at the University of Sussex in England who has researched their impact.“If I asked who you confided in, you wouldn’t mention them,” she said. Yet the resulting sense of belonging that weak ties confer is “essential to thriving, feeling connected to other people” — even among introverts, which is how Dr. Sandstrom defines herself.From left, Charlie, Ollie and Abby, Ms. Geanoules’s, Ms. Marsh’s and Ms. Tirondola’s dogs, respectively. (Mr. Gong’s dog was kept home that day by a foot injury.)Bryan Anselm for The New York TimesIn her early studies, hand-held clickers were distributed to groups of undergraduate students and people over 25 to track how many classmates or others they interacted with, however minimally, over several days. Those who interacted with more weak ties reported greater happiness, and a greater sense of well-being and belonging, than those with fewer interactions.The researchers found “within-person differences,” too, showing that the effects were not a result of personalities. The same individuals reported being happier on days they had more interactions. Other studies found similar benefits when people smiled and undertook brief conversations with baristas at a Starbucks in Vancouver, British Columbia, or greeted university shuttle bus drivers in Ankara, Turkey.Most of these participants were quite young, but one study, published in 2020, followed an older sample of more than 800 adults in metropolitan Detroit over 23 years.The researchers asked subjects (average age at the start: 62) to draw three concentric circles, with “you” in the center, and to arrange people in their lives by degree of closeness. Those in the innermost circle of close ties were almost always family, said Toni Antonucci, a psychologist at the University of Michigan and senior author of the study. The weak ties in the outermost circle included friends, co-workers and neighbors.Over time, the number of weak ties more strongly predicted well-being than the number of close ties. Weak ties “provide you with a low-demand opportunity for interaction,” Dr. Antonucci said. “It’s cognitively stimulating. It’s engaging.”The Covid pandemic, striking when social scientists were already raising alarms about the health risks of loneliness and isolation for older adults, suspended many of these everyday exchanges.Seniors often kept in touch with their families, one way or another, but where were the waiters who knew their breakfast orders, the bank tellers, crossing guards and dog walkers? “I hope it made people realize how much weak ties matter,” Dr. Sandstrom said. Though they can’t replace close ones, “we missed the novelty and the spontaneity,” she said.At older ages, when social networks tend to shrink, people may have to work at expanding them. “Make the effort,” Dr. Antonucci advised. “You can’t create new children at 70, but you can create new weak ties.”The Brookdale Park dog owners have become real friends beyond the park, going to dinner, movies and comedy shows together.Bryan Anselm for The New York TimesIlze Earner, 67, retired last year after 25 years of teaching at Hunter College in Manhattan. Life in rural Claverack, N.Y., had its satisfactions and friendships, but after a few months, “I started feeling like I was missing something,” she said. She began taking herself to lunch weekly, sitting at the bar at the nearby Chatham House.Soon, the bartender had learned her name (and vice versa) and of her love of lobster rolls. Ms. Earner won a bar-top game of ice cube bocce against the highway crew who also came in for lunch. “They noticed when I disappeared because I had a knee replacement, and when I came back it was, ‘Hey, bionic woman!’” she recalled. “It’s nice.”In Placerville, Calif., David Turoff, 72, a veterinarian, chats with his mail carrier and UPS deliveryman, and sometimes drops in on the mechanic who repairs his truck just to say hello or leave a gift of firewood. “They make me feel good,” Mr. Turoff said of such brief interactions. “I like having connections with people.”Toby Gould’s day begins with a 7 a.m. visit to Chez Antoine, a bakery and coffee shop in Hyannis, Mass. Mr. Gould, 77, a retired minister, buys a takeout latte and speaks French, haltingly, with the Belgian proprietor, who bestows a slice of ham on Mr. Gould’s Australian shepherd, Layla. If the shop closed, “it would leave a hole in my life,” Mr. Gould said.Weak ties, including those developed online, don’t necessarily turn into close ones and don’t have to. Close relationships, after all, can involve conflicts, demands for reciprocity and other complications.But sometimes, weak ties do evolve.The Brookdale Park dog owners, for instance, have become real friends. They go out to dinner together and see movies and comedy shows. In bad weather, they walk in a local mall. Mr. Gong, who is handy, hung curtains for Ms. Tirondola and shellacked cabinets for Ms. Geanoules; he gave Ms. Marsh a ride home when she left her car at a garage for repairs.A bit hesitant at first to exchange phone numbers, “we took a giant step,” Ms. Geanoules said, pausing to pat and coo at one of the Abbys. “You can change a lifetime by talking to someone for 10 minutes.”

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