Leaked emails reveal child gender service concerns

Published31 minutes agoShareclose panelShare pageCopy linkAbout sharingImage source, James Anderson/BBC NewsBy Josh ParryLGBT & Identity ProducerSenior bosses have shared concerns about the closure of the NHS gender identity clinic for young people, leaked emails seen by BBC News reveal.Hospital executives voiced worry about the cancellation of appointments, patients lacking information and poor communication with the new services.In one email, the service’s director, Dr Polly Carmichael, said cancellations could potentially put patients at risk.NHS England insisted patients would have “continuity of care”.Trans treatment waiting list a ‘death sentence’NHS England to stop prescribing puberty blockersWhat does transgender mean and what does the law say?The controversial Gender Identity Development Service (Gids), which is run by the Tavistock and Portman NHS Foundation Trust, is due to close later this week.Its closure was announced in July 2022, after an independent review said a “fundamentally different” model of care for young people with gender-related distress was needed. The service – the sole NHS gender identity service for children in England and Wales – was rated as “inadequate” by inspectors in 2020.It will initially be replaced by two new regional hubs; a London-based southern hub and a north of England hub. Additional hubs are expected to open in the coming years. Not enough detailsHowever, BBC News has spoken to staff at the existing service who say, just days before the 31 March closure, they have been unable to answer basic questions from patients about the future of their care.They say they still do not have enough details about how the new services will operate or when some provisions will be fully operational in the new clinics.The BBC has also seen emails in which staff at the new services complain about a lack of information. Several sources said they had been asking for months for NHS England to help set up channels of communication between the teams to assist with a smooth handover.NHS England says it has organised a meeting between the new and old teams.The BBC understands that meeting only took place weeks before the closure of Gids.BBC News has also been given a dossier of internal emails – sent between February last year and this month.In one email, sent earlier this month, current director of Gids Dr Polly Carmichael informed staff about the “unexpected” cancellation of children’s appointments at endocrinology clinics.In the email, dated 8 March, she said the cancellations could create a “risk” to some patients and that the process had been “poorly managed, as we did not know in advance”.”I know this is upsetting but [I] hope we can contain and support any families who make contact,” she wrote.NHS England told the BBC a decision on whether these appointments would be rescheduled was yet to be taken.’Far from an ideal situation’In another email exchange, in November last year, clinicians wrote to Dr Michael Holland, chief executive of the Tavistock and Portman NHS Foundation Trust, to raise concerns that they had “insufficient information” for patients. They wrote: “The situation is now having a significant impact on the safety and well-being of the families we are supporting.”On the same day, Dr Holland replied: “Your concerns are extremely important, and these are concerns that [the senior leadership team] share.”He added: “We are in dialogue with [NHS England] on these very points as we are extremely worried that we need clarity. It is far from an ideal situation.”One family told the BBC they were still “completely in the dark” about their child’s future care, saying they had found out more information from news reports than from the NHS.Patients and their families have now received letters explaining that the oversight of their care will transfer from Gids to the new service.However, many say they still do not have basic information, such as names or contact details of the doctors taking over their children’s care.Instead, the letters advise that those with urgent concerns or queries should contact their GP, local mental health crisis teams, or Child and Adolescent Mental Health Services (Camhs). Continuity of care One of the most controversial elements of care provided by Gids was the use of puberty blockers – drugs that NHS England said were a way to “delay” the physical changes of puberty. The NHS recently said the drugs would no longer be routinely prescribed for gender-distressed children and that more research was needed as there was not enough evidence about whether they were “safe or effective”.However, sources say they fear the part of the new service that gives psychological support to children still taking those drugs will not be fully operational when the service transfers across.That includes a team at Nottinghamshire Healthcare NHS Foundation Trust, which will take over the support of children who are currently approved for puberty blockers or cross-sex hormones.Job adverts for senior roles in Nottinghamshire – including a principal clinical psychologist, psychiatrists and specialist nurses – only closed to applicants last week, just days before Gids is due to shut.A spokesperson for the Nottinghamshire Healthcare NHS Foundation Trust said they had hired some some staff and were still actively recruiting more. It said the new service would open on 2 April but would not provide details on when they will be able to see patients.The closure of Gids followed an independent review by Dr Hilary Cass, in which she called for care at the new services to be more “holistic”.An NHS England spokesperson added: “In line with the Cass Review, NHS England took the decision to close Gids at the Tavistock and set up a fundamentally different and improved approach to children and young people’s gender services.”Patients will see continuity of care when the new services come online from April, and all patients waiting will be offered a local mental health assessment if they want it, with extra national resource provided to ensure the best possible support.”If you or someone you know needs information or support for issues about sexuality or gender, these websites and organisations may be helpful.More on this storyTrans treatment waiting list a ‘death sentence’Published5 days agoNHS England to stop prescribing puberty blockersPublished12 MarchNew youth gender services further delayedPublished18 October 2023

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NHS England to stop prescribing puberty blockers

Published10 hours agoShareclose panelShare pageCopy linkAbout sharingImage source, ReutersBy Josh ParryLGBT & Identity ProducerChildren will no longer routinely be prescribed puberty blockers at gender identity clinics, NHS England has confirmed.The decision comes after a review found there was “not enough evidence” they are safe or effective.Puberty blockers, which pause the physical changes of puberty, will now only be available as part of research.It comes weeks before an independent review into gender identity services in England is due to be published.An interim report from the review, published in 2022 by Dr Hilary Cass, had earlier found there were “gaps in evidence” around the drugs and called for a transformation in the model of care for children with gender-related distress.Dr Cass’s review follows a sharp rise in referrals to the Gender Identity Development Service (Gids), run by the Tavistock and Portman NHS Foundation Trust, which saw an increase from 250 per year to over 5,000 in 2022.New youth gender services further delayedChild gender clinic closure leaves uncertain futureWhat does transgender mean and what does the law say?Puberty supressing hormones – more commonly known as puberty blockers – work by suppressing the release of hormones that cause puberty and are often prescribed to children questioning their gender as a way of stopping physical changes such as breast development or facial hair.Fewer than 100 young people in England are currently prescribed puberty blockers by the NHS. They will all able to continue their treatment.NHS England held a public consultation on their usage and last year introduced an interim policy which stated they should only be given as part of research trials or in “exceptional circumstances”.The BBC understands that the new policy, confirmed on Tuesday, will not allow them to be prescribed “routinely” outside of a research trial, but that individual clinicians can still apply to have the drugs funded for patients on a case-by-case basis.Gids is due to close at the end of March. Two new NHS services due in London and Liverpool are set to open at the beginning of April, followed by a number of regional specialist centres over the next two years.Health Minister Maria Caulfield said: “We have always been clear that children’s safety and wellbeing is paramount, so we welcome this landmark decision by the NHS.”Ending the routine prescription of puberty blockers will help ensure that care is based on evidence, expert clinical opinion and is in the best interests of the child.”The consultation on the future of gender services received more than 4,000 responses, including 10% from trans adults and 5% from clinicians.John Stewart, national director of specialised commissioning at NHS England, said: “Given that the debate is often very polarised, so too were the responses to the consultation.”Many people said the policy didn’t go far enough in terms of still allowing potential access [to puberty blockers] through research, and others saying clearly they disagreed fundamentally and that these should be routinely available to everyone who believes they need it.”The BBC understands NHS England aims to begin its study into the use of puberty blockers by December 2024, and is yet to decide who can take part.More on this storyPuberty blockers to be given only in clinical researchPublished9 June 2023

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Artists bid to make Aids memorial near Diana ward

Published16 minutes agoShareclose panelShare pageCopy linkAbout sharingImage source, Getty ImagesBy Josh ParryLGBT & Identity ProducerA shortlist of artists competing to create London’s first permanent Aids memorial has been announced.The monument will be situated near the former site of Middlesex Hospital, the UK’s first dedicated Aids ward famously opened by Princess Diana in 1987.Campaigners hope it will pay tribute to those lost to Aids-related illnesses and help educate about the disease.The charity behind the project, Aids Memory UK (AMUK), officially began campaigning for a memorial in 2016.A panel of judges including AMUK trustees, art historians, and doctors specialising in Aids and HIV, as well as a board of people who represent communities affected by the Aids crisis, will select a winner from five shortlisted artists.The five, who live or work in London, are former Turner Prize nominee Anya Gallaccio, Ryan Gander, Harold Offeh, Shahpour Pouyan and Diana Puntar. The winning artist will be announced in June 2024 with the final memorial set to be unveiled in 2026.It will be situated in central London, close to the hospital where the UK’s first dedicated Aids ward was opened by Princess Diana.Her visit to Middlesex Hospital was credited with helping to challenge the belief that HIV or Aids could be transmitted by touch, after she famously shook hands with a man suffering from Aids.Image source, Emile HolbaA statement released by AMUK says the memorial aims to raise awareness of the “continuing impact of HIV and Aids”, as well as celebrate those living with HIV, and those who campaigned for better care for people living with the condition.Ash Kotak, founder and artistic director of AMUK, said the shortlist announcement was “incredibly exciting.”He added: “It has been a long journey to get to this point of delivering the first permanent Aids Memorial in London.”This group of acclaimed and very inspiring artists, with their diverse practices, each bring a different perspective to the memorial.”Mayor of London Sadiq Khan has committed £130,000 from the city’s Commission for Diversity in the Public Realm to help fund the memorial.He said: “I’m proud that London is leading the way in tackling HIV globally, and we are doing all we can to address the stigma related to the virus. “This permanent memorial will ensure we remember those affected and honour the ongoing fight against HIV and Aids, and tackle the discrimination around it.” More on this storyMayor commits £130,000 for first-ever Aids memorialPublished1 December 2023London’s first Aids memorial planned by campaignersPublished7 April 2021

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